Last night at work, I took care of a baby who isn't going to live. Coming onto a shift and getting hit with this news right away is a rough way to start off an introduction to a family I have never met before. The thoughts that kept crossing my mind were whether or not I could handle being in their position. Now that I have a child, I can't imagine having to make end of life decisions regarding her care. Wretchedly awful. I could barely keep the tears back as I worked with this over-wrought family. At one point, he was having one of his near-death spells, turning nearly black from holding his breath (a color that no parent should ever have to see in their baby's face), the family is crying, I'm trying not to freak out about whether I was going to call a "code blue" on him (no DNR in place yet), and I realized how good I can be at stuffing the emotions of my job and putting on the clinical task-driven face. I think that I have seen too many things on my job that would cause me to be angry, heart-broken, sad, or a questioner of how God allows things to happen in a certain way and therefore, it's easy to just add this to the tally of sad cases. I'm pretty sure I'm becoming somewhat cynical or just too scientific about this line of work and that I need to be ok with the pain of it and allow that to come out in a healthier way. I mean, even the doctor, who was writing the DNR order and discussing each of the options of what they were or weren't going to do to prolong his life, was weeping along with the mom. That was amazing to see, as physicians are usually so professional and not emotional about their jobs.
Anyway, none of this makes much sense as a paragraph, but I just needed to get some of this stuff out. Blech. And as for the baby- I hope he went home with his family today with Palliative Care. I gotta say, for a baby with Trisomy 13, he looked perfect (they usually don't). And I would say he out-performed most kids who have that diagnosis and he's lived longer, too (3 weeks). Amazing and yet so crappy all at the same time.
